Friday, May 2, 2008

Wonderful Progress from the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation just published the following press release:

We have some exciting news. We are pleased to tell you that, over the past seven days, Congress and the President took action on four separate bills that champion the rights and health of people with cystic fibrosis.

The Cystic Fibrosis Foundation played a hand in each of the following developments:
  • The Senate officially recognized May 2008 as National Cystic Fibrosis Awareness Month.

  • Congress passed the Genetic Information Nondiscrimination Act (GINA) today. This law makes it illegal for employers and insurance companies to discriminate based on genetic information.

  • President Bush signed into law the Newborn Screening Saves Lives Act, which provides resources and funding for new and existing newborn screening programs through 2012.

  • The House of Representatives reauthorized the Small Business Innovation Research (SBIR) program. This program awards grants to small biotechnology companies that conduct important CF research.
Each of these initiatives has tremendous potential to help people with CF. These bills help increase awareness of cystic fibrosis, focus research funding on CF, and establish critical legal protections to help people with the disease live longer, healthier lives. Click here to learn more.

These successes would not be possible without you. Thank you for your diligence and dedication.


Alexandra said...

Our 6 month old baby was just diagnose with variant CF. I have been reading your blog tonight and wanted to thank you for all of this information. You have our appreciation and admiration. Thank you so much.

careysue said...

Lauren, I second what Alexandra said! I finally have accepted no coughing and it's great. Rickie has never been so "healthy". I guess I was just nervous waiting for the other shoe to drop. Realized that is no way to live and I thank you for that. Thanks again.