The Benefits of Exercising when You Have Cystic Fibrosis
The risk of dehydration in patients with cystic fibrosis is a legitimate concern, however, it is not reason enough to exclude people with cystic fibrosis from participating in as many normal activities as possible.
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Lauren,
I have really enjoyed looking over your blog. There is some great information here!!!
I'm Christy,age 38, with CF.
Hi Lauren, This is Lily from the Cystic Fibrosis Foundation. Thanks so much for your blog, and for sharing your knowlege about CF. Your post reminded me of a recent CBS evening news story that featured an adult with CF who completed the New York Marathon. You can watch the clip on the Foundation's YouTube Channel, www.youtube.com/cysticfibrosisusa. Here is the link: http://www.youtube.com/watch?v=csXBIztpKZY.
Hi Lauren,
I am interested in learning about pancreatic insufficiency. I think that my body is experiencing those symptoms. How did you get diagnosed with CF????
Hello! My name is Svetlana Atanasova, I'm from Bulgaria. I have a twelve-year-old daughter who has CF. The treatment is not good enough here. I would like it to change. I ask for your help, we collect information about treatment abroad. Please, write me back on my e-mail: atanasovasv@abv.bg
http://www.lifewithcf.org/
Here is my blog: http://srazmah.blogspot.com/
Svetlana Atanasova, Bulgaria
Hi! My name is Anna Jones and I'm a research assistant at the Rothman Center for Pediatric Neuropsychiatry, a division of the University of South Florida. We are conducting an online questionnaire study on the nature of anxiety as it relates to Cystic Fibrosis severity and quality of life in a pediatric population. The title of this IRB-approved study is “Cystic Fibrosis Severity, Anxiety, and Health Related Outlook on Life: A Mediational Analysis.” The purpose of this study is to examine the relationship anxiety levels have to Cystic Fibrosis severity and quality of life. In addition, this study also seeks to examine the impact anxiety levels have on health utilization in children with Cystic Fibrosis. We are looking for parents or legal guardians of children ages 7 to 17 with Cystic Fibrosis to participate in this study. If you have any questions at all feel free to e-mail Anna at ajones5@health.usf.edu
The link for the survey is:
http://hsccm2.hsc.usf.edu/checkbox/Survey.aspx?s=5ffc56467f7e4512b85223ae3edbf358
I am a blind father. I have a daughter with CF. I am paddling 65 Miles this April blind but will paddle to raise funding and awareness. Please visit my page: http://www.paddleforcf.com or facebook PaddleForCF, twitter @paddleforcf
Hi, no update from you lately. How are you?
I have pulmonary hypertension along with restrictive lung disease thus I use a bipap nightly. Check out my blog: http://phenomenalyouthcanada.ca/
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