Wednesday, August 6, 2008

Myth #5: People with CF are Thin and Sickly-Looking

Fact: People with CF look just like anyone else.

Cystic fibrosis patients who have pancreatic insufficiency have trouble gaining weight even with ravenous appetites, but with the help of pancreatic enzyme supplements, they can and do achieve a healthy, normal weight for their age and sex. CF patients who are pancreatic sufficient may actually be slightly overweight since their bodies work normally to absorb calories and nutrients from what they eat.

It’s impossible to tell if someone has cystic fibrosis just by looking at them. Everyone with CF has a different set of complications relating to their disease. Some have more lung problems, while others have more digestive issues. Some are barrel-chested because of the extent of lung disease. Some look just like their non-CF siblings or relatives.

The only way to truly know if a person has CF is if they tell you. Never assume.

1 comment:

Amy said...

Hey Lauren

I have no other way to get in touch with you and I feel bad posting on your blog so feel free to delete this after you read it :)

I lost the link to the article you wrote with me in it. I thought I put it in my favorites but I guess not :(

if you could email me the link at that would be super :)


And again sorry for jumping on the blog :)